Alexis Carey suffers from Dravet Syndrome, a form of epilepsy that has left the nine-year-old unable to speak or use the bathroom. She is subject to violent seizures that can last an hour or longer. No relief is provided by any of the FDA-approved medications available. When Alexis succumbs to a seizure – she sometimes endures sixty episodes a month – her parents, Michael and Clare, can do little more than act as witnesses to their daughter’s agony. Dravet-induced seizures can cause permanent brain damage, and many children thus afflicted don’t reach adulthood. If the Careys lived in Utah, Alexis … Continue reading Suffering in the Service of Official Lies